So Complex, So Perfect, So Dylan 💙

dylansstory

I’m back…. After having writers block for almost three quarters of a year. I feel I have so much going around in my head I need  to release some before I explode

image

Since I last wrote we’ve been on several more adventures, some good…….. And quite a lot bad.

We found out the drug we had been holding out for all this time could shorten his life. This knocked me of my perch but like a trouper I got back up and simply carried on…..

IMG_0731

More medial equipment arrived. Which dylan hates and I’m not jumping for joy over. But ‘excuse the pun’ little steps n’all……..!!

IMG_0428

Christmas was fast approaching and Dylan was on good form. I was extremely organised and ready for a lovely family Christmas filled with fun and laughter and lots of baileys!!!

IMG_0729

Dylans 5th Christmas and finally he recognised the tree, the sensory twinkly lights he loved. What…

View original post 899 more words

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s