So Complex, So Perfect, So Dylan 💙


I’m back…. After having writers block for almost three quarters of a year. I feel I have so much going around in my head I need  to release some before I explode


Since I last wrote we’ve been on several more adventures, some good…….. And quite a lot bad.

We found out the drug we had been holding out for all this time could shorten his life. This knocked me of my perch but like a trouper I got back up and simply carried on…..


More medial equipment arrived. Which dylan hates and I’m not jumping for joy over. But ‘excuse the pun’ little steps n’all……..!!


Christmas was fast approaching and Dylan was on good form. I was extremely organised and ready for a lovely family Christmas filled with fun and laughter and lots of baileys!!!


Dylans 5th Christmas and finally he recognised the tree, the sensory twinkly lights he loved. What…

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