A B C Easy as 1 2 3 πŸπŸŽ

Or simple as Do re mi ABC, one, two, three, baby, you and me Dyl’s!

Would you send your one year old to school?

My 5-Year old represents a 1-Year old in almost every single way. He is the most scrummy, loving lovely little boy you’d ever meet but he is not mentally, physically or even psychologically ready for school and that’s without throwing his complex health issues into the mix.  

 

Would you expect your non-verbal, non-mobile 1-Year old to interact in a classroom full of 5-Year olds?


It would be like chucking him into the lions den, he’d get trodden on, dribbled on and treated like the baby he looks like. 

  
Now, what if your 1-Year old had serous life-threatening and life-limiting complex health issues, would you send him or her to school?

NO!!! Then we are on the same page…… Please read on……. 

It’s that time again when all the lovely pics are being posted on social media sites of their littlens starting school, going into Year One and so on. I for one will be posting a pic of my beautiful daughter next week on going into Year Five! All smart and in her brand new uniform, first day pics, who wouldn’t be prouder??

Officially September 2015 is when Dylan should be going into Year One. But because of his birthday so late in the academic year I was able to postpone his Reception start from last September until now. However, because Dylan is Dylan, and has health and development complications We decided from when he was a very young age that a school, albeit a Mainstream or an SEN would not be likely to meet our sons needs. 

Home Education isn’t a decision we have taken lightly, it’s not the norm, but Dylan’s not the norm so it just makes sense. However, we are anxious about Dylan not making his own friends, I worry that I am keeping Dylan wrapped in cotton wool away from civilisation but if I unwrapped him I fear for his life being surrounded by dozens of children daily with coughs, colds and childhood virus’s. 
  

So here we are, all ready to start Home Education. Let me introduce myself, ‘Teacher, Mrs Mummy’ “Mummmmmma” to Dylan and like any teacher preparing for a new academic year I am getting all prepared to start Dylan’s Education plan for next Monday. 

  

So far I have a wooden puzzle, a shape sorter, a handmade photo book of all of Dylan’s favourite things and people and some Mickey Mouse stickers and pens & paper. Along with a camera and scrap book to make some wonderful memories of Dylan’s school days for me to keep and to cherish. 
  

To be honest what I will be doing with him won’t be much different from what you and I do with our babies & toddlers on a daily basis. It’s the love and nurturing which we give them that comes naturally which helps them to learn and develop. Dylan takes a bit longer than others but that means I get all this extra time with him. 

What sort of curriculum should I use?

I have done lots and lots of googling about SEN Home Education and there isn’t any specific curriculum that you must use. The majority of articles I have come across are based on Autism, which has helped and prepares me a bit. What about thousands of other conditions, or even the grey area ‘undiagnosed??‘ 

Most articles recommends that you try various mediums and techniques and see what works best with your child. The law apparently doesn’t require use of a certain curriculum so I am free to pick and choose what Dylan enjoys and what helps him learn the best and most suited to his ability level. One of the advantages of teaching your own child at home is that you can customize what you do for their special needs and circumstances. There is no one-size-fits-all curriculum. 
  

Since April 2015 our local council have ceased their mainstream home education department which includes special needs. As our needs are ‘exceptional circumstances’ therefore Dylan is being Home Educated on the grounds that he just isn’t healthy enough to go to school. So as far as I know I am left to do it alone. I have been told there may be funding further down the line, but the support and guidance of a tutor to encourage and support me and Dylan is nonexistent apparently. 

So I will just have to share Dylan’s accomplishments with you guys!!!! 

  

To all the mummies, daddies and guardians out there who have, like me very little or no choice but to home school their lovely little ones I take my hat to off to you, you’re all doing a fabulous job.

 
  

So, Autumn term, here I come…… And boy do I have the cutest teachers pet. 🍎🍏

  

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6 thoughts on “A B C Easy as 1 2 3 πŸπŸŽ

  1. I know you don’t know me but I have been following Dylan s story since I saw him on Facebook and he is a gorgeous little boy and you are a great mum and you will be a great teacher and I wish you and your family health and happiness .please let me know how Dylan got on at the doctors

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    1. Hi Frances. Thank you for your continued support and wonderful messages it means a lot. Dylan’s got an ulcerated tongue and throat, something he suffers from repeatedly due to his medication and low immune system. For a child on no sleep he’s happily watching Mickey Mouse right now. X

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      1. HI Dylan’s Mum! Hope you are having a good day today, especially our wonderful little lad Dylan X X I am arranging a children’s photo board at work and would love Dylan to be on it, I believe I spoke to you about it last time we met. If you think Dylan would like to see his photo on our board and be even more of an inspiration to other children who come to see us.please let me know and we can make arrangements that suit you all.
        Take care
        Love Carol (Phlebotomist at PAH) X X X

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      2. Hi Carol. Hope you are well. Thank you for your message Dylan would love to have his photo on your board.
        He has started his immunoglobulin treatment so has been having weekly bloods on the ward but will be back to you doing his regular bloods once I am able to treat him at home.
        If you’d like to contact me via email to discuss further please do. My email address is dandanmyers@gmail.com.
        Speak soon.
        Danielle & Dylan xx

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  2. Hello,
    I’m a producer from Record TV, from Brazil, one of the largest TV networks in South America. Our crew based in London would like to do a report about Dylan’s story. We would like to talk about his rare undiagnosed syndrome, to explain his specifics circumstances, which are the main health complications affecting him, which are the main difficulties and victories the family have faced on the last years, how you expect his condition to develop on the future time, why you have opted how important is the family, doctors and social network’s support. We would like to interview Dylan’s mother to talk about all this subjects and why for now she have decided to home teach him. We need to film Dylan interacting with the family at home and doing some activity he enjoys.
    We also would like to interview any of Dylan’s doctor or therapists to talk about the more scientific specifications of SWAN and how to deal with conditions that doctors don’t know too much about.

    The report will air in our main special news show called Domingo Espetacular.
    Please let me know if it would be possible.

    Look forward to hearing from you.

    Kind regards


    FlΓ‘via Duarte
    producer
    Record TV

    fladuart@gmail.com
    http://www.r7.com
    +44 (0) 7814885073
    +44 (0) 2076866313
    199-201 Seven Sisters Road
    London – UK
    N4 3NG

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