The lead up to Christmas, my favourite time of year. But like every year I wonder what Dylan will make of it. Last year, his fifth Christmas
he recognised Christmas trees and pointed to the lights, this year, Christmas number 6 I am hoping Dylan will get a little pleasure from the festive period.
I love this festive time of year, the build up to Christmas is the most exciting. I love being a Christmas Fairy and spending all my money on my children, husband and loved ones ensuring they all have the most fabulous gifts (note to hubby…. I still love receiving gifts too – mostly of the designer handbag sort lol!!)
Dylan’s always the most difficult to buy for, as he is not age appropriate and his level of development plateau’s. This year I have found some beauty’s for my little prince! Can’t wait to give him them
Those of you that know me know I love to, in my spare time, which there’s not much of in my world, make beautiful handmade hair bows. I enjoy doing two Christmas fetes each year locally.
This year, as we are in the process of starting Dylan’s Story Charity (not a registered Charity yet) I will be putting all my sales towards Dylan’s new wheelchair accessories, which we went for fittings for today. So if you buy a bow from my stall you’ll know you are helping a great cause
Which leads me on to…….
Every single hurdle is tough and not one is in the ‘mummy hand guide’ But of my hardest yet, which even though I have been expecting it for years, acceptance is tough. Today was Dylan’s wheelchair assessment….. You see my five year old baby fits so snug in his McLaren stroller I’ve wanted to keep him in it. He’s happy in it. It’s lightweight, & great for doing Christmas shopping with!!
However, Dylan, who is already Hemevertibrae T6-9 (slightly curved spine) is leaning to the left putting a strain on his spine and pelvis meaning he could fix in this position. Now we don’t want that, so my broken heart aside, we tested the wheelchairs. We have decided to go with a ‘special buggy’ wheelchair. It’s bulky, it’s heavy, it’s ugly and horrible and if I am honest I totally hate it but Dylan took to it like a duck to water, or a SWAN in our case.
It should be delivered after Christmas so time for me to mentally prepare myself to push a ‘wheelchair’ around. Sell lots of bows to help fund it. But like with everything else that’s been chucked at me I will learn to love it and deal with it just fine. After all my beautiful boy will be in it
To sum up how I’m feeling knowing my Dylan’s going from a buggy to a wheelchair is heartbreaking, admitting the truth hurts, life stinks sometimes……
Dylan mummy loves you more than you will ever ever know. 💙💙💙